Vulvar lichen sclerosus - all you need to know

Last year I had the pleasure to meet Jaclyn Lanthier at the Society for Sex Therapy and Research in Toronto.

She introduced me to vulvar lichen sclorosus patients’ advocacy and we started working together to create representations of the bodies of people living with the condition to better train physicians and raise awareness for faster diagnosis.

Pelvic pain is…well, a pain ⚡. And sadly, it is often treated badly, for years, until it is sometimes too late and damages are irreversible.

That is why it is FUNDAMENTAL to know about it, the why, the how, and that there can be a way into remission. Because this type of pain hurt more than the body: it impacts the soul, the self-esteem, the day-to-day life and our relationships.

So let’s talk about it. Let’s share ressources and support those who live with chronic pelvic pain.

Those ressources are for free. They are done by volunteers. Wouldn’t it be nice to imagine a world in which important health ressources would be written by paid professionals so that all of us could actually have a life ad earn a living? Shiish…got lost in some pink pony dream there for a moment 🌈 Sorry.

Lichen sclereux vulvaire

Adaptation in French of Jaclyn’s work and research on vulvar lichen sclerosus.

Was it worth it working on it for six months? Was it necessary? Should it have been done much earlier? Hell yes to all of the questions above!

It’s been shared on patients support groups and read more than 250 times since last week. Patients need information. Clear, accessible one. Information that gives back control and helps make informed choices. It’s hard enough living with chronic pain. Let’s support and empower one another as much as possible.

Lichen sclerosus Jaclyn

“After immersing myself in the lichen sclerosus community, I was struck by how many folks with LS lacked the fundamental education pieces of lichen sclerosus. I realized the majority of folks weren’t provided any lifestyle and support guidance for living with LS after being diagnosed. There are three fundamental things I believe are important to have in place when living with lichen sclerosus. Those are:
education,
having a treatment plan you feel comfortable with,
and support.
These topics make up the three major sections in this eBook.” Jaclyn

Vulvar lichen sclerosus – all you need to know

So let’s talk about it. Let’s share ressources and support those who live with chronic pelvic pain.

Support and information groups in English:

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