Process and results from the last weekend.
Five new models are joining the database. Specificity: all models live with lichen sclerosus, an autoimmune condition that can affect people of all genders and attacks the mucous membranes of the genitalia. This causes burning, pain, thickening and whitening of the skin, fusion of the inner labia to the outer labia and other un-joyfull symptoms. A very uncool condition, poorly understood, poorly diagnosed and really poorly treated.
Fortunately, there are expert-patients like Jaclyn from The Lost Labia Chronicles who have tackled the problem head-on and are educating and informing those affected and the medical community. Participants at last Saturday’s workshop left with more information than they’d ever received from their doctors, and will be able to better treat themselves and educate other patients and healthcare staff. Plus, they have found a local support network.
In short, a little workshop in a Montreal living room with big consequences! Thanks to Jaclyn and the participants!
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